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Stroke-Proof

52 members • Free

3 contributions to Stroke-Proof
Experience for patients not on a stroke ward.
Hi, I am curious to know how other people's experience has been who were not treated on the stroke ward for whatever reason. I feel, from my experience that there is a huge difference in the stroke specific support you receive and when this happens early on, it negatively impacts your recovery. For example, I was on a vascular ward for 4 weeks (my stroke occurred during surgery), I saw the Stroke team once, I didn't see any of the stroke therapy team and therefore was not given the physio etc I needed until I reached a neuro rehab ward, but which time i had additional problems such as a frozen shoulder. I have had eye problems since the stroke and the consultant I saw today was shocked I hadn't been referred to a specialist Stroke Optometrist when I was still in hospital. I was not given any contact at the Stroke Association until I joined the Stroke group in Aintree (who informed me this was normally done before you left hospital)). My stroke was last July and I feel it's become more and more apparent that if you are not treated on a stroke ward, you do not get the same level of stroke care or follow up. I can't be the only one. How many of us slip through the net? I feel it is an area that needs attention to make sure everyonehas the same care/experience. I understand staffing issues, I am a nurse, in the same trust. The focus is very much on the acute care a the time of the stroke, which of course is important. But if you are just left after that and only then get help if you are lucky enough to join a group, or see the right eye doctor, or ask the right questions (if you can) that surely is not ok?
🧠 The Power of Social Contact
Why staying connected is crucial Stroke prevention isn"t just about the medical stuff — blood pressure, cholesterol, glucose. One of the biggest protective factors is something far more human: 🤝 Staying socially connected. Strong social ties reduce stroke risk through several powerful pathways: Lower cortisol & allostatic load — loneliness is biologically stressful. Regular connection buffers stress hormones and supports vascular health. Better habits — people with strong social networks move more, drink less, and make healthier choices. Early warning — friends and family notice subtle changes in your speech, balance, or cognition that you might miss. Sharper brain, longer life — social interaction protects against cognitive decline and dementia, which often overlap with the same risk factors for stroke. The evidence? 2 Large population studies have shown that loneliness and social isolation increase stroke risk by 25–30%, and raise all-cause mortality by a similar amount. Connection isn’t “nice to have.” It’s a real physiological need. --- How to build your stroke-proof social routine Pick ONE of the following this week: Call or meet a friend you haven’t seen in a while. Plan a weekly ritual — Sunday walk, Friday coffee, mid-week gym session with someone. Join a group (local club, sports team, community group, or our Stroke-Proof monthly check-in). Strengthen the micro-moments — ask how someone’s day is going, send a voice note, share an encouraging message. Small, consistent contact creates benefits. Share below what you’re doing, and let’s keep each other stroke-proof. 💬🧠 Here's the links for the 2 research studies: https://pubmed.ncbi.nlm.nih.gov/27091846/ https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-024-19835-6?utm_source=chatgpt.com
0 likes • Nov '25
@Nikhil Sharma I've been enquiring about walking options, redneighbours has a programme I will try to put here.
💚 Parkrun: The Free Way to Boost Fitness, Mood & Community
Looking for a simple habit that supports heart health, lowers blood pressure, lifts mood, reduces stress, helps manage weight, and builds community? Parkrun is your answer. 📜 A Little Parkrun History Parkrun began in 2004 in Bushy Park, London, when founder Paul Sinton-Hewitt invited just 13 runners to a simple, timed 5k. No fees, no medals, no pressure — just community and movement. From that tiny gathering, parkrun grew into a global movement with millions of walkers, joggers, runners, and volunteers. ✅ Why Parkrun Works ✨ Free, friendly, and for all ages — walkers, runners ✨ No barriers — no cost, no special gear, no “I’m not a runner” stigma ✨ Community connection — encouragement and belonging keep you coming back ✨ Health boost — improves fitness, mood, confidence, and long-term motivation 🧠 Stroke Prevention Power = movement + nature + social connection Parkrun supports: • Cardiovascular health & blood pressure • Mental wellbeing & mood • Weight management • Confidence & self-esteem • Skills & purpose through volunteering • Management of long-term conditions 🌍 Healthcare Approved Endorsed by the Royal College of GPs as a social-prescribing option. 💬 Ready to Start? Sign up online (free forever): parkrun.org.uk Print your barcode Turn up to any event Walk, jog, or run Enjoy the community & post-run glow! Your first Parkrun could be the start of a healthier, happier you. Why not give it a try this Saturday?
3 likes • Nov '25
I often went to parkrun before my stroke and am currently back volunteering at both normal parkrun and junior parkrun which is great for mental health too and keeping in touch with the community I was part of as I can't walk far enough to do it yet.
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Myka Heard
2
15points to level up
@myka-heard-1618
Hi, my name isI'm a 59 year old nurse, who works at Aintree Hospital. I had vascular surgery in July this year and had a stroke during surgery.

Active 9d ago
Joined Nov 22, 2025