4d • General discussion
Experience for patients not on a stroke ward.
Hi, I am curious to know how other people's experience has been who were not treated on the stroke ward for whatever reason. I feel, from my experience that there is a huge difference in the stroke specific support you receive and when this happens early on, it negatively impacts your recovery. For example, I was on a vascular ward for 4 weeks (my stroke occurred during surgery), I saw the Stroke team once, I didn't see any of the stroke therapy team and therefore was not given the physio etc I needed until I reached a neuro rehab ward, but which time i had additional problems such as a frozen shoulder. I have had eye problems since the stroke and the consultant I saw today was shocked I hadn't been referred to a specialist Stroke Optometrist when I was still in hospital. I was not given any contact at the Stroke Association until I joined the Stroke group in Aintree (who informed me this was normally done before you left hospital)). My stroke was last July and I feel it's become more and more apparent that if you are not treated on a stroke ward, you do not get the same level of stroke care or follow up. I can't be the only one. How many of us slip through the net? I feel it is an area that needs attention to make sure everyonehas the same care/experience. I understand staffing issues, I am a nurse, in the same trust. The focus is very much on the acute care a the time of the stroke, which of course is important. But if you are just left after that and only then get help if you are lucky enough to join a group, or see the right eye doctor, or ask the right questions (if you can) that surely is not ok?
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Experience for patients not on a stroke ward.
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