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Monthly Prevention Check In is happening in 9 days
Botox
A question please. Does anyone else have regular botox injections in their affected side, to help combat nerve pain and spasticity? I've been having them for 2 years now every 4 months or so, and do find they help. Just wondered whetherothers have them and find them helpful. Your colleague Dr Colin Pinder has a clinic at clatterbridge, so I see him there. Hope everyone has had a good start to the year and is doing as well as possible. Happy weekend all and keep smiling Andy
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First Stroke Prevention Conference
First Stroke Prevention Conference Liverpool UK Date: 30 jan • 09:00 https://www.eventbrite.co.uk/e/first-stroke-prevention-conference-liverpool-uk-tickets-1978104655273?aff=ebdsshother&utm_share_source=listing_android&sg=e31a5e59cd65382654c74b74f576cc8490e35e47af1c8b85b10c68e60693fcf06dc7f228c314d1a775d0908e9efd2e1fd5fc1f09c3a489e6ca5dee995ffa3b334c4372c0ee890edd3340b30c44aa
Tomorrow's catch up
Good afternoon. I hope everyone is getting on well with their challenges this week. I've been parking at the far side of the hospital car park to increase my step count and get a bit more active. Just a reminder that we have a catch up scheduled in for tomorrow at 7. This is an informal meeting for anyone who wants to ask a question and to support eachother. Hope to see you then. Nik
Temperature regulation / nightmares vivid dreams
Evening all 👍 Does anyone else struggle with temperature regulation,mainly of a night but also in the day. I often wake in the small hours absolutely drenched with sweat and am also prone to hot flushes at random points in the day which after feeling excessively warm ends with me feeling cold before returning to normal. Last time I checked I was a man and am not perimenopausal like my wife who suggested I may be having empathy symptoms. These symptoms have been occurring since I first had my stroke and I can often confuse this with bed wetting at times ( which is another bloody symptom 😂). Be interested to know also if anyone else has really vivid dreams and nightmares since there stroke? I had really bad delerium after my open heart surgery/ stroke but this has carried on almost two years later,but thankfully only during sleep! I no longer believe Vladimir Putin has a spy with a dirty bomb trying to kill me nor have I seen it spoken to my imaginary friend little Eddie for quite some time 😂.
Welcome
👋 Welcome to the Stroke-Proof Community! We’re building something special here — a movement to prevent 1 million strokes. To make this a safe, supportive, and inspiring place, we ask every member to live by this simple pledge: 🫶 Our Community Pledge ✔️ Respect first — we’re survivors, families, doctors, and prevention-minded people. Everyone’s story matters. ✔️Engage with with group. This isn't about one doctor lecturing a group. We all have important information and experience to share. ✔️ Evidence over hype — we share strategies backed by science, not fads or fear. To help others tell the difference we cite our sources, even if the source is just personal experience. ✔️ No diagnoses or prescriptions — support each other, but leave medical decisions to your own doctor or message me for a private consultation. ✔️ Protect privacy — what’s shared here, stays here. ✔️ No spam — we’re here to help, not hustle. ✔️ Stay positive & constructive — we’re here to build each other up and take real action. ✔️ Share the message - If you think this group has the potential to help you or others to avoid having a stroke, please share a link to others to join us.
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