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38 contributions to Stroke-Proof
Building healthy habits
We are what we repeatedly do. Excellence, then, is not an act, but a habit.” — attributed to Aristotle. We've done so many stroke prevention posts that I've temporarily run out of things to say. So, I'm going to recycle an old post today. But I think it's a really important post on habit formation. There's no point in knowing how to be healthy if we don't act on it and that's where habits come in. Please share your thoughts on how you build healthy habits. *Habit formation Tip 1: Make it Obvious* We usually perform habits after being triggered by a cue. Find the best cues for the habits you want to do and amplify them. If it's eating fruit buy a huge striking fruit bowl and put it in a really obvious place. If it's going for a run first thing, leave your trainers right by the bed so you can't miss them in the morning, even better go to bed in your running clothes too. If it's flossing put a post-it note on your bathroom mirror. Whatever it takes, just make the habit inescapable. We've got billion dollar companies using the exact same tactics to flood us with cues to eat more junk and watch TV, so we need to fight back with our own tailored queues that actually serve our needs.
0 likes • 3d
My goal is to get back on my bike and drive now that my eyes have improved enough to do so!! Found out on Tuesday I am absolutely made up.
Catch up tomorrow
Good evening. Just a reminder that we have our catch up tomorrow at 4pm. Link in the calendar section of the app. A chance to share how we're getting on, what our plans are to keep our stroke risk down, ask questions and make friends. If you have any specific questions feel free to share them ahead of time in here and I can prepare answers, or I can answer off the cuff if needed! Have a lovely evening. Nik
1 like • 12d
Its in my diary Nik
❤️ Can you help me create something better for stroke survivors?
Good afternoon, everyone. I'm hoping some of you might be willing to help me with something that's very close to my heart. I'm looking for volunteers who would be happy to spend around 30 minutes chatting with me, either on Teams or over the phone, about your experiences following a stroke. *Why am I asking? Having worked in stroke medicine for many years, I know how much of a difference good care and support can make. But I also know that, despite the dedication of so many NHS staff, stroke services don't always provide everything that survivors and their families need. Sometimes that's because of limited resources. Sometimes it's because we, as healthcare professionals, haven't spent enough time really listening to people who've experienced a stroke and understanding what matters most to them. I want to help change that. But first, I need to listen. I've already had the chance to chat with one or two of you in detail and several fo you have replied to my prior post asking about what you needed after a stroke. This time I want to use the time for the conversation to go a little deeper. I'd love to understand more about your experiences, including: - How did you and your family feel in the days, weeks and months following your stroke? - What were your biggest worries, questions or frustrations? - What information or support did you need but struggle to find? - Where did you turn for answers? - Looking back, what could have made your journey a little easier? There's no right or wrong answer, and I'm not looking for anyone to share anything they feel uncomfortable discussing. Your experiences, whatever they may be, are what matter. *What am I hoping to achieve? My ambition is to make life after stroke a little less frightening, confusing and overwhelming. I want future stroke survivors and their families to be able to find clear, trustworthy information, practical advice and meaningful support without having to spend hours searching or feeling that they're facing everything alone.
0 likes • 13d
experiences, including: - How did you and your family feel in the days, weeks and months following your stroke? Scared didn't understand medications, therapy resources or support. - What were your biggest worries, questions or frustrations? Being isolated and not knowing what was going on. Trying to make sense of my capabilities and how they fit into normal life! - What information or support did you need but struggle to find? Carer information and support is vital for families they are doing most of this. We are battling with fatigue and other issues relating to stroke. - Where did you turn for answers professionals, google and the life after stroke group. - Looking back, what could have made your journey a little easier? - Knowing what had happened and having clear signposting to support/ resources. Hope it helps 🙏 Kev
Your story/message of hope
Dear wonderful Stroke-Proof members, A key part of the Stroke-Proof community and the future book will be sharing stroke survivors stories. I hope these stories will provide hope to other stroke survivors. Especially those who have recently had a stroke and might be wondering what the future holds in store for them. I also hope it will be a useful opportunity for you to reflect on your journey. If you want to do so please use this thread to share your story, but remember there is no pressure to do so. If you could please also confirm whether you are happy for your story to be shared in the book and in other materials for Stroke survivors and if we do so whether you would prefer to remain anonymised. If you woud like to share your story in here but to remain anonymous you can do so by direct messaging me and I will then copy and paste what you send me into the chat. I would highly recommend writing whatever you want to say in a word document and then copy and pasteing it into here as I know some people have lost entries in here that didn't save properly. I hope you have a happy Friday!
1 like • 23d
I would love to contribute.
1 like • 20d
I will work on this week
Hospital discharge info
Apologies for all of the questions this week, but we really value your input. We are working on a hospital information letter which would be tailored to each stroke survivor with key information. I've attached drafts of 2 possible documents which we might use. One was designed by us and the other is from the World Stroke Organisation. Please could you provide feedback on both documents to help guide us in producing a final document which will hopefully be the best of both worlds.
3 likes • Oct 1
I agree with Ruth but can see the positives in both documents. I wonder if merging the documents would be the way forward. Condider using the initial info in documents 113kb then the what happened part of document 91kb. Think this is crucial!! Other useful information to be included on the document 91kb such as signposting the various resources and the need for: NROL and Skool as a care pathway needs to be indicated. Suggested routine bloods ......3/12? Contact details...... But it looks really good 👍
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Kevin Christian
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@kevin-christian-8824
Rebuilding my life following a stroke.

Active 3d ago
Joined Dec 21, 2025