Update on my mum’s recent PET scan

Just wanted to share where things are at with my mum’s treatment. Her latest PET scan showed a new, brighter lesion near the stomach. The team is now waiting for her tumour markers to come back from the labs, and they’ve booked more scans to get a clearer picture.

They will have an MDT (Multi-Disciplinary Team) meeting this Thursday to review her case and discuss whether she should continue with Immunotherapy (Keytruda) or if changes need to be made to the treatment plan.

She’s also developed belly and leg edema over the past few weeks, which could suggest lymphatic obstruction from cancer progression — a pattern we’ve seen happen in other cases.

For now, we’re holding steady and hoping for more information from this week’s tests and meetings. I’ll update again when we know more.

If anyone has experience with this kind of progression after about a year of Keytruda — or has used any supportive strategies at this stage — I’d love to hear.

Not quite the news we were hoping for — but the oncologist said that if this is progression, it’s very slow, which given my mum’s aggressive cancer type shows that the protocol has at least helped to slow things down so far.

For now, I’m hoping she will continue with her current protocol (because she “doesn’t want to slow it down if remission isn’t possible”) and that she will be willing to add Turkey Tail mushrooms, as they’ve been shown to help improve the immune response and support PD-1/PD-L1 therapies like Keytruda.

We also haven’t done enough Methylene Blue or light yet — something I’d like to optimise — and I’m now considering adding CDS (chlorine dioxide solution) to the protocol at this point too. Also, we might switch the pulse to mon-tue-wed and stopping the Curcumin, Quercetin and Resveratrol on press days to allow the pro-oxidant therapies to work with full effect.

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