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I never thought I’d be posting this. I am completely shattered.
I’ve spent my life as an emergency doctor, but nothing prepared me for the moment the tables turned. Two days ago, my 7-year-old daughter, Lily, was rushed into the ICU. I am now sitting here watching her fight a severe Lupus flare that has attacked her system with a ferocity I’ve never seen. I’m struggling to even breathe as I write this. I’ve already lost my wife, and Lily is my entire world along with my son. Seeing her hooked up to these machines is pushing me into a darkness I can't describe. I feel like I’m at the end of my rope honestly, I feel like I’m losing my mind and my will to keep going. The isolation of this hospital room is suffocating. I don't use the messaging apps on here much because I’m constantly on my work phone. If anyone has the heart to just be a human connection for a grieving father—if you can send a text or a supportive voice note to help me stay grounded so I don't give up please just comment 'I'm here' below.
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Cortisol
Anyone have any experience with cortisol inhibitors?
It's Been A Hot Minute
Hellllloooo!!! I have been MIA lately and for that I apologize! Would love to know how everyone is doing lately? How is life? How are you keeping Lupus in line? What do you WANT to see from me and how can I support you ❤️
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How I became 'That Lupus Coach'
Everyone has their story and I wanted to share mine with you ❤️ I have been diagnosed with Lupus since July 2021, the story gets easier to tell, but the memory forever feels like it happened yesterday ❤️ Stasia (That Lupus Coach) - YouTube
How I became 'That Lupus Coach'
Happy New Year!
I did not mean to slip away from activity in this group lately. Holidays, work, studies and the battles my son has at times consume! Staying as positive as we can and know we will figure this new path out. Wishing all a good minute, good hour, good day, good week, good month, good year. One step at a time 👣
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Not Today, Lupus
skool.com/not-today-lupus
This community is for those learning how to redesign their normal living with Lupus and having access to others who are doing the same. Welcome :)
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