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Owned by Stasia

Not Today, Lupus

28 members • Free

This community is for those learning how to redesign their normal living with Lupus and having access to others who are doing the same. Welcome :)

14 contributions to Not Today, Lupus
Whatsapp
Hello! I have started a WhatsApp group for us to be able to chat with one another and keep up with events, calls and such. Please join the link below ❤️ would love to get some convos going 🫶🤘 https://chat.whatsapp.com/GDtTRSmMtgiLBXehxNCMng
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I never thought I’d be posting this. I am completely shattered.
I’ve spent my life as an emergency doctor, but nothing prepared me for the moment the tables turned. Two days ago, my 7-year-old daughter, Lily, was rushed into the ICU. I am now sitting here watching her fight a severe Lupus flare that has attacked her system with a ferocity I’ve never seen. I’m struggling to even breathe as I write this. I’ve already lost my wife, and Lily is my entire world along with my son. Seeing her hooked up to these machines is pushing me into a darkness I can't describe. I feel like I’m at the end of my rope honestly, I feel like I’m losing my mind and my will to keep going. The isolation of this hospital room is suffocating. I don't use the messaging apps on here much because I’m constantly on my work phone. If anyone has the heart to just be a human connection for a grieving father—if you can send a text or a supportive voice note to help me stay grounded so I don't give up please just comment 'I'm here' below.
1 like • Mar 24
William I am so incredibly sorry you are going through this :( I dont know how I missed this post and I am so incredibly sick to my stomach that I did. Thank you for allowing us into your world and being vulnerable with us ❤️ Im going to message you
Cortisol
Anyone have any experience with cortisol inhibitors?
0 likes • Mar 5
Are you meaning prescription meds or more natural like Ashwagandha or Magnesium? ❤️
It's Been A Hot Minute
Hellllloooo!!! I have been MIA lately and for that I apologize! Would love to know how everyone is doing lately? How is life? How are you keeping Lupus in line? What do you WANT to see from me and how can I support you ❤️
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Welcome Post
Hello and WELCOME!!!! So excited to have you here and would love to learn a bit about you! Please introduce yourself, share a little or a lot about yourself (totally up to you) and what brought you into the community/hoping to gain from it ❤️ Also your favorite pet (photos are highly encouraged) ☺️
1 like • Dec '25
@Kelly Quinn so happy to have you and love you wanting to share the knowledge and community with loved ones ❤️
3 likes • Jan 20
@Ruth Levesque So happy to have you! :) Thank you for supporting this community, would love to spread as much awareness as possible ❤️
1-10 of 14
Stasia Clark
3
32points to level up
@stasia-clark-5799
Hello! I am in WA State! I help people redesign their new normal when life just feels a little too much :)

Active 18h ago
Joined Sep 6, 2025
washington
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