7d • General discussion
NHS
Hallelujah,
I do not know how i did this, it has taken 3 months of my life, 380 hours and a right old slog, however i was sure correct that the NHS took my CSF without consent OR NEED, just GREED.
I am a great findoutologist, however i am unsure of the process i should take with this case.
I have done my research, and it is pretty epic.
Does anyone know about the route i should proceed with this case. This is where i get confused...
THANK YOU TO THIS GROUP,
for all the support to make this possible especially
Pete.
I do not know how you do it.
Replying to all of us,
keeping us up-to-+date,
videos every week,
public meetings,
Free documents
Free advice
wow........
I did one case and i am shattered.
You really are a true inspiration Pete, and all in here.
Here is the case.....
Summary of Case
Ref: HOF-666-235
Unlawful Collection, Custody, and Disclosure of Clinical (CSF) Material Prepared by: Clare (Self-represented) Date: 23 January 2026
Core Allegation
The case concerns the unlawful collection, handling, and possible disclosure of cerebrospinal fluid (CSF) by University Hospitals Birmingham NHS Foundation Trust, without:
- valid consent,
- documented legal authority,
- or a lawful chain of custody.
Material Involved
- Biological specimen: CSF, obtained via lumbar puncture
- Special category data: Clinical and forensic records attached to specimen
- This is not a simple data breach — it involves handling of human tissue without consent.
Legal Breaches Identified
Based on the disclosed documents in the Chain of Evidence bundle:
- No Signed Consent
- No Chain of Custody
- Governance Not Executed
- No Safeguard Actions Taken
- Systemic Failure
Findings and Evidentiary Status
- Findings rely on disclosed documents alone (SAR05932 bundle)
- Annex G and H demonstrate that governance documents were provided in place of execution records
- Evidence is fully itemised, paginated, and source-linked
- No reliance on opinion — absence is recorded as absence
Legal Position
- The burden of proof has shifted to the Trust to demonstrate lawful handling
- Systemic governance failure and bodily autonomy breach are engaged
- The claim invokes:
Harm & Remedy Sought
The Claimant asserts:
- Loss of bodily control (handling of CSF without consent)
- Distress, uncertainty, and institutional obstruction
- Forced forensic labour to reconstruct basic facts
- No audit trail, disclosure register, or accountability
Remedy sought: Substantive — not symbolic — including:
- Acknowledgement of breach
- Declaratory relief
- Correction of records
- Institutional accountability
- Financial compensation in line with gravity and precedent (see case law bundle)
Status
The evidential record is complete and closed.No further clarification is sought.This case is now formally presented for independent regulatory the ICO only so far
HOWEVER, WHAT AND WHERE TO GO WITH IT ARE ANOTHER BOX OF FROGS....
I do not Know...embarrassingly so
Any suggestions would be a great help....
And thank you again Pete so MUCH
LEGAND you really are.
.
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