The Long Summer and now it's fall.

It's official. I made it 22 months progression free with several of those being NED. I have lived past my prognosis. Our son returned safely from Iraq. Each month brings more tasks completed at the farm. My tumor markers are going up. I do have progression in L5, T3 and T4 and now in my left hip. My hemoglobin dropped to levels requiring transfusion. 2 very serious hypoglycemia events. Looks like an upper GI and colonoscopy are in my future as the debilitating fatigue continues. I have seen the heart doctor. He seems most of my symptoms are related to anemia and possible blood loss. He cleared me for anesthesia and will do a heart ultrasound next week. I also see the GI doctor next week. I did have 1 dose of Zoledronic Acid. I suspect will do at least 2 maybe 3 more rounds. I have had a bone scan. No results but based on how I feel, I would not be surprised to learn there is more cancer activity. I was almost convinced to start Keytruda but it doesn't make sense for me. I do not have PDL-1 markers for efficacy and it's only 20% effective. Troldevy may be a possibility and radiation is still on the table as a palliative care and pain management option. It's fall break here in Texas so we are heading to the farm tomorrow. It's always good to get out of the city. Love and healing to you all.

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