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DOWN SYNDROME FORGOTTEN
Where families find hope, support, and truth — behind closed doors. --- Our Mission Down Syndrome Forgotten exists to serve the families who feel overlooked, unheard, and under-supported — the ones living the real journey behind closed doors. From wandering to meltdowns, from sleep apnea to medical battles, from school struggles to systemic barriers, we walk with the families who are tired of fighting alone. Our goal is simple: No child with Down syndrome. No family. No caregiver. Forgotten. --- Who We Serve We support families navigating: Down syndrome Autism ADHD Dual diagnosis Sleep apnea & Inspire device Intellectual disabilities Communication delays Behavioral challenges DDD/ALTCS, IEPs, ISPs, school systems Wandering & safety concerns Complex caregiving burnout This is a safe, judgment-free space for caregivers who have been carrying everything quietly. --- What We Provide Parent advocacy support System navigation (DDD/ALTCS, IEPs, ISPs) Behavior & safety guidance Family education Caregiver community Real-life resources Emotional support & lived experience Connection to service providers Special needs homeschool/micro-school guidance Behind Closed Doors storytelling & truth-sharing Every tool, resource, and conversation is built to empower families on the front lines of caregiving. --- Why We Exist Because the truth is this: Most of the world has no idea what happens behind closed doors. The late nights. The wandering. The meltdowns. The medical chaos. The appointments. The exhaustion. The fear. The invisible battles. You don’t have to navigate this alone. This community was built for you. --- How to Get Involved 1. Join the Behind Closed Doors Movement Stay connected through community discussions and caregiver conversations. 2. Share Your Story Your truth helps another caregiver breathe. 3. Learn, Heal, and Grow Explore resources, podcasts, videos, and weekly caregiver support. 4. Reach Out Anytime We are here when the world is not. --- Contact General Support: behinddoorsmovement@gmail.com
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DOWN SYNDROME FORGOTTEN
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Welcome Home, Caregivers-You're Not Alone
Welcome Home, Caregivers — You’re Not Alone Hey family, welcome to the Behind Closed Doors Movement — a safe space created to empower caregivers, parents, and advocates through advocacy, storytelling, and faith. This space is where we come together to share our truth, learn practical tools, and connect with others who get it. Here’s how to get started: 1. Introduce yourself below — tell us who you care for and one thing you wish more people understood about caregiving. 2. Check out the Caregiver Truths (BCD) category for short podcast-style reflections. 3. Visit the Calendar tab soon — we’ll post live chats and advocacy training dates there. This isn’t just a group. It’s a movement. Let’s lift each other up, one story at a time. #CaregiverStrong #BehindClosedDoors #CaregiverTruths
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Caregiver Recharge Challenge — Day 1
We pour so much into others that sometimes we forget to pour back into ourselves. So this week, let’s change that — one small step at a time. Challenge: Do one thing today just for you. It could be: Taking a 10-minute walk outside Listening to your favorite song Saying “no” to something that drains you Enjoying a quiet moment without guilt Then, come back here and drop a quick comment “Here’s how I recharged today…” Let’s remind each other that our energy matters, too. #CaregiverWellness #BehindClosedDoors #RefillYourCup
Caregiver Recharge Challenge
Caregiver Recharge Challenge — Day 1 We pour so much into others that sometimes we forget to pour back into ourselves. So this week, let’s change that — one small step at a time. Challenge: Do one thing today just for you. It could be: Taking a 10-minute walk outside Listening to your favorite song Saying “no” to something that drains you Enjoying a quiet moment without guilt Then, come back here and drop a quick comment “Here’s how I recharged today…” Let’s remind each other that our energy matters, too. #CaregiverWellness #BehindClosedDoors #RefillYourCup
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Let’s Talk Caregiver Truths
Sometimes caregiving is beautiful — and sometimes, it’s just hard. Today I want to start a real conversation: What’s one truth about caregiving that most people don’t understand? Maybe it’s the emotional toll. Maybe it’s how lonely it feels when no one checks in. Or maybe it’s the strength you’ve found that you didn’t know you had. Drop your truth below — no filters, no judgment. Every story shared here helps another caregiver feel seen. #CaregiverTruths #BehindClosedDoors #CaregiverStrong #RealConversations
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Behind Closed Doors Hub
skool.com/behindcloseddoors
"The official online home of the Behind Closed Doors Movement."
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