Nov 22 (edited) • Down Syndrome Forgotten
DOWN SYNDROME FORGOTTEN
Where families find hope, support, and truth — behind closed doors.
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Our Mission
Down Syndrome Forgotten exists to serve the families who feel overlooked, unheard, and under-supported — the ones living the real journey behind closed doors. From wandering to meltdowns, from sleep apnea to medical battles, from school struggles to systemic barriers, we walk with the families who are tired of fighting alone.
Our goal is simple:
No child with Down syndrome. No family. No caregiver. Forgotten.
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Who We Serve
We support families navigating:
Down syndrome
Autism
ADHD
Dual diagnosis
Sleep apnea & Inspire device
Intellectual disabilities
Communication delays
Behavioral challenges
DDD/ALTCS, IEPs, ISPs, school systems
Wandering & safety concerns
Complex caregiving burnout
This is a safe, judgment-free space for caregivers who have been carrying everything quietly.
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What We Provide
Parent advocacy support
System navigation (DDD/ALTCS, IEPs, ISPs)
Behavior & safety guidance
Family education
Caregiver community
Real-life resources
Emotional support & lived experience
Connection to service providers
Special needs homeschool/micro-school guidance
Behind Closed Doors storytelling & truth-sharing
Every tool, resource, and conversation is built to empower families on the front lines of caregiving.
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Why We Exist
Because the truth is this:
Most of the world has no idea what happens behind closed doors.
The late nights.
The wandering.
The meltdowns.
The medical chaos.
The appointments.
The exhaustion.
The fear.
The invisible battles.
You don’t have to navigate this alone.
This community was built for you.
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How to Get Involved
1. Join the Behind Closed Doors Movement
Stay connected through community discussions and caregiver conversations.
2. Share Your Story
Your truth helps another caregiver breathe.
3. Learn, Heal, and Grow
Explore resources, podcasts, videos, and weekly caregiver support.
4. Reach Out Anytime
We are here when the world is not.
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Contact
General Support: behinddoorsmovement@gmail.com
Special Needs Support: downsresources21@gmail.com
Text Only: 623-220-8800
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Welcome to Down Syndrome Forgotten.
This is your safe place.
Your community.
Your people.
Behind closed doors, you don’t have to be alone anymore.
Caregivers Chronicles
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DOWN SYNDROME FORGOTTEN
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"The official online home of the Behind Closed Doors Movement."
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