Bio: The Face behind the story, diagnosed at 5. Transplanted in 2019.

Bio: I am the mom to an OTC neonatal onset girl. My husband has two liver transplants at age 4 and is a healthy adult now.

Bio: Faith-driven wife & mama of four. OTC impacted my sister-in-law & niece.

Bio: Navy veteran ⚓️ My sister and niece have been affected by OTCD growing up.

Bio: I’m here to learn and support my niece who has OTC deficiency, a rare metabolic disorder. Hoping to connect, learn, and better support our family.

Bio: Hi

Bio: Raluca

Bio: OTC

Bio: OTC patient.

Bio: Ever learning and growing! The light in me honors the light in you.

Bio: Lisa Fuentes-Weinstein

Bio: /

Bio: My daughter was diagnosed with OTCD August 2025 after bloodwork showed she was in an ammonia crisis and in PICU for 5 days, we are grateful to be here

Bio: My name is Jade, I have recently been diagnosed with OTCD after the passing of my son,

Bio: .

Bio: My Daughter has Urea Cycle Disorder

Bio: Mom of 2 beautiful children. Daughter who got diagnosed with OTC. Just trying my best to be there for her and to help where I can

Bio: CEO ADCUM Association of Urea Cycle and Metabolic Disorders

Bio: Hi

Bio: OTC CARRIER. Sadly lost my 14 year old Son to OTC

Bio: I have OTC and was diagnosed at age 5. I live in Minnesota

Bio: Desereé

Bio: Grandmother supporting grandson with OTC. Diagnosed at 12 months following acute hyperammonia episode. Managed on Arginine & Sodium Benzoate

Bio: Hannah

Bio: Hi everyone, I am Mum to a teenager with OTCD in the UK

Bio: Mom (carrier) with two OTCD girls :)