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6 contributions to Stroke-Proof
Building healthy habits
We are what we repeatedly do. Excellence, then, is not an act, but a habit.” — attributed to Aristotle. We've done so many stroke prevention posts that I've temporarily run out of things to say. So, I'm going to recycle an old post today. But I think it's a really important post on habit formation. There's no point in knowing how to be healthy if we don't act on it and that's where habits come in. Please share your thoughts on how you build healthy habits. *Habit formation Tip 1: Make it Obvious* We usually perform habits after being triggered by a cue. Find the best cues for the habits you want to do and amplify them. If it's eating fruit buy a huge striking fruit bowl and put it in a really obvious place. If it's going for a run first thing, leave your trainers right by the bed so you can't miss them in the morning, even better go to bed in your running clothes too. If it's flossing put a post-it note on your bathroom mirror. Whatever it takes, just make the habit inescapable. We've got billion dollar companies using the exact same tactics to flood us with cues to eat more junk and watch TV, so we need to fight back with our own tailored queues that actually serve our needs.
1 like • 24h
My habit is ‘closing my rings’ on my Apple Watch. Before the stroke I would do this everyday but I hadn’t done it since my stroke. 12 months ago. Two months ago I adjusted my targets to more representative levels for my new situation. And my private physio had given me exercises to achieve the new targets
Post stroke rehabilitation support
Firstly, I am sorry if I offend any professionals, they have all been nice dedicated people, but they’re also complicit in the shortcomings of post stroke support This report is a result of a survey in which I participated. It highlights the shortcomings in post stroke support Firstly, the report speaks about the first six months and that this is the best chance for recovery. I spent 4 months in Hospital following the incident and I received little to no therapy. What I did receive was mostly aimed at freeing up my Hospital bed not improving my condition, but meeting certain milestones to discharging me. EG how far can you walk with a stick? Can you sit in a chair for six hours? So much of that six month window was missed. When I was discharged, I received a little therapy but again mostly aimed at a checklist not aiming to improve my disabilities but rather meet certain milestones. EG how fast far can I walk with a stick? Can I prepare my own meal (even though I can’t cook it and I can’t actually lift it to another room to eat it). And that post Hospital support lasted 2-3 months. Then for the following 6 months I have received no NHS physiotherapy and the occupational therapist was basically just a conduit to obtain various aids rather than to obtain any chance of actual recovery so I had to resort to paying for a private physiotherapist. I have two versions of this report a short one for victims and second longer one for professionals. Which the author has asked me to share
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The benefits of Private Physio Therapy
I haven’t received any NHS Physio Therapy since I was discharged from the ICSS in April and referred to the Community Team apart from two social visits with the OT to introduce themselves . I can’t leave my home yet so my options were limited. Firstly I saw a specialised stroke private physio (once) at home and was severely underwhelmed, I only saw him once. Then after a few months I saw another (non-specialist)Physio and I’m glad I persevered as everything he does seems relevant and although I’ve yet to see any significant benefit. I feel that I’ve a much better chance of a partial recovery than I did sitting on my backside waiting for NHS help. It’s money that I can’t really afford, but then again, I can’t afford to do nothing and if anyone is thinking of spending some money on a private Physio, if you get the right one, it’s definitely worth it. I’m willing and able to do anything I can to improve my situation, but it seems the NHS does not have the facilities to help
❤️ Can you help me create something better for stroke survivors?
Good afternoon, everyone. I'm hoping some of you might be willing to help me with something that's very close to my heart. I'm looking for volunteers who would be happy to spend around 30 minutes chatting with me, either on Teams or over the phone, about your experiences following a stroke. *Why am I asking? Having worked in stroke medicine for many years, I know how much of a difference good care and support can make. But I also know that, despite the dedication of so many NHS staff, stroke services don't always provide everything that survivors and their families need. Sometimes that's because of limited resources. Sometimes it's because we, as healthcare professionals, haven't spent enough time really listening to people who've experienced a stroke and understanding what matters most to them. I want to help change that. But first, I need to listen. I've already had the chance to chat with one or two of you in detail and several fo you have replied to my prior post asking about what you needed after a stroke. This time I want to use the time for the conversation to go a little deeper. I'd love to understand more about your experiences, including: - How did you and your family feel in the days, weeks and months following your stroke? - What were your biggest worries, questions or frustrations? - What information or support did you need but struggle to find? - Where did you turn for answers? - Looking back, what could have made your journey a little easier? There's no right or wrong answer, and I'm not looking for anyone to share anything they feel uncomfortable discussing. Your experiences, whatever they may be, are what matter. *What am I hoping to achieve? My ambition is to make life after stroke a little less frightening, confusing and overwhelming. I want future stroke survivors and their families to be able to find clear, trustworthy information, practical advice and meaningful support without having to spend hours searching or feeling that they're facing everything alone.
0 likes • 11d
I too would love to help. Things that feature. Realistic expectations, not just a check list to free up a bed. Better communication, what has happened and what to expect. An advocate who can chase what help you should be getting on you behalf. Better understanding of individuals circumstances eg. Sending someone home who doesn’t have a support network versus someone who does. As always any criticisms are of the system, not the individuals who all provide excellent care within their constraints.
💊 KNOW YOUR MEDICATIONS AFTER STROKE
After a stroke, you may suddenly find yourself taking several tablets every day. But often we aren't clear about what each tablet does and why. Many of the medicines prescribed after a stroke have one very important job — reducing your risk of another stroke. Here are some of the common ones: 🩸 CLOPIDOGREL / ASPIRIN — stopping platelets sticking together If you’ve had an ischaemic stroke — a stroke caused by a blood clot blocking an artery — you will often be prescribed an antiplatelet medicine. The most common long-term medication is clopidogrel. Aspirin is another antiplatelet and is commonly used immediately after an ischaemic stroke or TIA. Some people take aspirin instead of clopidogrel, and in certain situations aspirin and clopidogrel may be used together for a short period. These medicines make platelets less likely to stick together and form another clot. ❤️ APIXABAN, RIVAROXABAN, DABIGATRAN or EDOXABAN — preventing clots from the heart These belong to a group called DOACs — Direct Oral Anticoagulants. They are particularly important if your stroke was associated with atrial fibrillation (AF). AF causes the heart to beat irregularly. Blood can pool inside the heart, allowing a clot to form. That clot can then travel to the brain and cause a stroke. DOACs reduce the ability of the blood to form these dangerous clots. They include: • Apixaban • Rivaroxaban • Dabigatran • Edoxaban Some people need warfarin instead — for example, in certain types of heart-valve disease or with a mechanical heart valve. Importantly, anticoagulants and antiplatelets are not the same thing, and most people do not need both long-term unless there is another reason. 🫀 ATORVASTATIN and other statins — reducing cholesterol and stabilising arteries Statins are not simply “cholesterol tablets”. After an ischaemic stroke or TIA, a high-intensity statin such as atorvastatin is commonly prescribed to reduce the risk of another event. Lowering LDL cholesterol reduces the chance of cholesterol-rich plaques (artery deposits) growing or causing further problems in your arteries.
1 like • 16d
Yeah In common with many nobody told me about the medication I was taken (or even a diagnosis) For the record 1. Loratadine, Tablet, 10 mg allergies 2. Spironolactone, Tablet, 25 mg BP 3. Amlodipine, Tablet, 10 mg BP 4. Ramipril, Tablet, 10 mg BP 5. Paracetamol, Tablet, 500 mg x8 shoulder pain 6. Apixaban, Tablet, 5 mg A-fib 7. Atorvastatin, Tablet, 20 mg rising to 80 mg next prescription-cholesterol 8. Metformin, Tablet, 500 mg x 4 diabetes 9. Indapamide, Tablet, 1.5 mg BP My Hospital discharge letter listed BP, Cholesterol and Diabetes for GP follow up. All are still too high but I have to prompt them, regularly
1 like • 14d
It was the MRI technician that told me I had had a stroke, no-one else. A few days later later they did the 24hr electrocardiogram? And the nurse who did it just said, when asked if it had indicated anything she said it shows you have A-Fib. No further explanation. Once I had recovered a bit I did my own research to discover what all the drugs I was being given were for, possible Side effects and interactions. One other drug was mirtazapine. I was in a noisy emergency ward with 1 hour automated BP checks and was having trouble sleeping as a result. I had asked for something to help me sleep. Once I was moved to a much quieter stroke hospital it should have been stopped. I had to ask, especially when I discovered what the drug’s primary use was. Both the cholesterol and diabetes doses were only changed after I asked for a more recent test. I have a made GP appointment for 2nd November because my BP is still too high and I have possible side effects that started shortly after he prescribed indapamide about 5 months ago.
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Kevin Leah
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11 points to level up
@kevin-leah-1200
64, Newquay Cornwall, Ischaemic stroke October 2025. Left side affected. I too am determined to do everything to reduce the risk of another stroke.

Active 3h ago
Joined Sep 28, 2026
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