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Ankylosing & B27 Alliance

52 members • Free

2 contributions to Ankylosing & B27 Alliance
Read This First 👇 Why This Community Exists
If you’ve ever been told: - “It can’t be Ankylosing Spondylitis — there’s no spinal damage yet.” - "You are too young." - “Your pain can’t be that bad.” - “Let’s wait and see.” …welcome. You’re in the right place. I built this community out of frustration. Ten-minute medical appointments. Endless gaslighting. Real pain brushed off because imaging didn’t look dramatic enough. Meanwhile, I was dealing with constant flares — nerve pain shooting through my arms and legs, eye pain, groin pain, gut pain, and deep lower-back inflammation that never fully let up. No one wanted to ask why. So I did. I listened to podcasts. Read Facebook groups. Dug through Reddit. And everywhere I looked, the answer was the same: Biologics. Genetics. There's nothing else you can do. Full stop. But no one could explain why AS symptoms appear in the first place — or why flare-ups felt so tightly linked to what I was eating. Then I heard a random podcast where someone casually mentioned going into remission by cutting starch. That sent me down a rabbit hole: no-starch communities, old medical studies from the 1980s, gut bacteria, immune signaling, HLA-B27, and a whole lot of NEW research and science that exists in the last two years — but rarely gets explained to patients. Most diets I tried failed. Vegetarian and vegan made things worse. “Anti-inflammatory” worked sometimes but not always. Then I committed to no starch, no sugar, London AS-style. Week 3: worst flare of my life. Week 4: symptom-free for the first time in 10 years (and 2 years no flares so far). Not cured. Not perfect. But finally in control. Digging further, I found new research and experiments explaining my experience with validated, peer-reviewed medical journals. Finally, dots were connecting. That’s what this community is about. What This Group Is ✅Understanding how AS works — not just what it’s called ✅Connecting gut, immune system, diet, and flares ✅Science-first discussion (not vibes, not miracles)
0 likes • Jan 30
Exactly what I was looking for in a long time. 🙏🙌
Community Poll: What would help you most?
We've covered a wide variety of topics in the community so far. If there is something though that can help explain better or give more context? If you have ideas of what would help you -- please shout it in the poll below and I'll add it as a priority in my next few chapters.
Poll
6 members have voted
Community Poll:  What would help you most?
0 likes • Jan 27
First of all, thanks for your work the guide is super helpful. Especially chapter 11, which I finished just now, was outstanding. Now I am interested in the take aways and actions derived from the specs of the potential related bacteria. Diet (the obvious one), should one try pro biotics, …
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Hauke Gathmann
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5points to level up
@hauke-gathmann-7343
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Active 12d ago
Joined Jan 27, 2026