Respiratory Failure is the leading cause of death In Motor Neuron Disease. MND/ALS causes progressive weakness in the muscles controlling breathing, specifically the diaphragm and chest wall, leading to shallow breathing, fatigue, and shortness of breath. It often causes, disturbed sleep, morning headaches, a weak cough, and difficulty lying flat. Management includes Non-Invasive Ventilation (NIV) to support breathing, especially at night. Key Impacts on Breathing: - Diaphragm Weakness: The main muscle for breathing weakens, reducing the ability to inhale deeply. - Shortness of Breath (Dyspnea): Occurs during exertion and eventually at rest. - Orthopnoea: Increased breathlessness when lying flat. - Nocturnal Hypoventilation: Inefficient breathing during sleep, causing frequent waking, morning headaches, and daytime sleepiness. - Weakened Cough: Difficulty clearing mucus, increasing the risk of chest infections. - Hypercapnia: A dangerous buildup of carbon dioxide in the blood, which can cause confusion and drowsiness. - OPNMND WILL BE WORKING WITH KEVIN ON YHESE AREAS FOR OUR BREATHWORK PROJECT

Welcome!!! Diagnosed, carers and family members!! We’re new to this platform and really looking forward to developing our content and growing the OPNMND project community!! You’re all an important part of each others journey. We welcome suggestions on content you’d like us to build but please remember we aren’t giving medical advice but we can speak of experiences! There’s no room for negativity or conflict so please be mindful! Let’s lift each other up and stay there , we’re here to open doors for you to explore alternative routes through this unwelcome journey and find some brighter days! Much Love to all❤️ Phil