The E.WE Foundation
Private
6 members
Free
The E.WE Foundation is a global advocacy network for families affected by Trisomy 18 and other rare and complex conditions, and for the professionals who serve them.
This community is the central gathering space for the E.WE ecosystem. Families, professionals, advocates, students, partners, and supporters come together here to learn, connect, and advance rare disease advocacy with integrity and purpose.
Inside this community, you will find:
- Clear pathways into E.WE support programs
- Updates on our global advocacy work
- Education and resource sharing
- Opportunities for training and leadership development
- Ways to engage in systems change
- Stories of impact and community resilience
This community is not a replacement for clinical care or crisis support, but a safe space for connection, education, and coordinated advocacy rooted in lived experience and ethical practice.
Join a global network committed to action. Create an account to request your free membership today!
Welcome to the work!
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Global advocacy network for families affected by Trisomy 18 and other rare and complex conditions, and for the professionals who serve them