The E.WE Foundation
Private
5 members
Free
The E.WE Foundation is a global advocacy network for families affected by Trisomy 18 and other rare and complex conditions, and for the professionals who serve them. Our work bridges what happens in hospitals, homes, classrooms, legislatures, and communities around the world.
This community is the central gathering space for the E.WE ecosystem. It is where families, professionals, advocates, students, partners, and supporters come together to learn, connect, and move rare disease advocacy forward with integrity and purpose.
Inside this community, you will find:
- Clear pathways into E.WE support programs
- Updates on our global advocacy work
- Education and resource sharing
- Opportunities for training and leadership development
- Ways to engage in systems change
- Stories of impact and community resilience
This is not a replacement for clinical care or crisis support. It is a place of connection, education, and coordinated advocacy rooted in lived experience and ethical practice.
Welcome to the work!
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Global advocacy network for families affected by Trisomy 18 and other rare and complex conditions, and for the professionals who serve them