The E.WE Foundation
Private
4 members
Free
The E.WE Foundation is a registered 501(c)(3) nonprofit that supports families impacted by Trisomy 18 and other rare diseases, and the professionals who serve them. We are committed to transforming the landscape of rare diseases and bridging the gap between diagnosis and care coordination.
Our Mission
To provide resources and practical support to families impacted by Trisomy 18 (Edwards Syndrome) and other rare diseases, while reshaping medical perspectives through advocacy, education, and public policy. We are equally committed to equipping healthcare professionals with education and guidance and driving systemic change through awareness initiatives.
Our Vision
A world where all families affected by Trisomy 18 and other rare diseases have equitable access to quality healthcare, early intervention, and essential social services.
Our Core Values
We believe every individual—especially those facing chronic or terminal illness—deserves immediate and unbiased access to care and support.
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The E.WE Foundation is a global advocacy network for families with rare and complex medical conditions, and the professionals who serve them.