4d • General discussion
Happy bank holiday Monday
I remember a time as a carer when every day was exactly the same. Weekends, weekdays, bank holidays it really didn't matter. I'd had to give up work, I'd had to give up all my social activities and a break for me was being able to nip to the shop to get something.
Finding a way for self-care during those times was really hard but I did.
We splashed out on an inflatable hot tub (no pun intended) and spending a short time in the hot tub listening to my favourite music was "my time".
Life is very different now and I get lots of opportunities for self-care. I've still a lot of responsibilities as a carer for my son but as his journey moves forward my role is much less overwhelming.
We also know that with his journey it may not always be a straight road forward. For me it's important not to dwell on the what ifs.
I've learned the importance of living in the present. That means that while things are going well I get to enjoy them, to celebrate with him.
Should that change again we will deal with it as best we can but I will not let unnecessary worries about what tomorrow MAY bring steal today's joy.
I hope whatever stage you are in your journey you get time for yourself today and get to enjoy that beautiful sunshine 🌞
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Happy bank holiday Monday
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