A new survey from Urology Times caught my attention this week. It looked at the role of caregivers in the treatment journey for men with metastatic prostate cancer — and confirmed something I've heard again and again from families in this community.
The partner isn't just "there for support." They're tracking symptoms. They're remembering what the doctor said. They're asking the follow-up questions. They're holding the whole thing together.
And yet, they're frequently left out of formal care discussions.
For those of you who've been through this — as a partner, as a family member, as the man himself — I'd love to hear your experience.
What was the most important thing your caregiver did that you didn't expect? Or if you were the caregiver — what do you wish the medical team had included you in more?