"Don't worry, Itâs Only IBS!â
Sound familiar? Thatâs what my doctor told me all those years ago; dismissing my symptoms like they were no big deal. But if youâre here, you already know that IBS is more than âjustâ IBS.
đ The Beginning of My IBS Journey
I was around 15-16 when I first noticed something was wrong. It started with small stomach cramps, urgent trips to the toilet and feeling bloated after meals. I chalked it up to too much sugar and cut back on snacks. But the symptoms didnât stop. They got worse.
Suddenly, I wasnât just avoiding junk food, I was afraid of eating anything**.** Foods that seemed harmless one day would cause agony the next. My life became a constant guessing game of "Will this meal ruin my day?"
Then came my mock exams. Sitting in a silent room, stomach churning, praying I wouldnât need to make a mad dash to the bathroom. The fear of that moment became bigger than the fear of failing my exams. Thatâs when I knew something was really wrong.
đ Searching for Answers (And Hitting a Dead End)
I went to the doctor, hoping for clarity. After a quick stomach exam and some blood tests, they ruled out anything "serious" and shrugged it off as exam stress.
Fine. Maybe they were right. Maybe once my exams were over, this would all disappear.
But it didnât.
It only got worse.
I started avoiding social events, football with my friends, even family gatherings, anything that involved being away from a toilet for too long. My life shrank.
So I went back to the GP, determined to get real answers.
Their response? "You're probably stressed about your results now."
At this point, I was furious. How could this still be about stress? Iâd been dealing with this for over a year. My frustration must have been clear because, finally, they mentioned IBS.
âIf itâs not Crohnâs or Colitis,â they told me, âitâs nothing to worry about. Itâs only IBS.â
Only IBS? Really? A condition thatâs forced me inside and to hide away from the world, is reduced to sounding like a mere inconvenience? That one sentence shaped my entire experience with this condition (and would later form the title of this community and my site: ItsOnlyIBS.com!) đ„ The Trial & Error Phase (AKA: Letâs Try Everything)
Now that I had a name for my condition, I did what every desperate IBS sufferer does - I became my own detective.
- I cut out gluten, dairy, processed foods, sugar, and FODMAPs.
- I tried Buscopan. It barely made a difference.
- I went to therapy. My first CBT therapist believed my IBS was entirely in my head and suggested I eat a chocolate bar and "just focus on the taste." Iâm lactose intolerant. You can guess how that ended.
Each approach felt like a false start - small improvements followed by more setbacks.
đ The âMedical Mysteryâ Phase
I kept going back to the GP every year between 2017 and 2019, hoping that this time, they'd have something new to offer.
- They prescribed SSRIs. Didnât help. I wasnât depressed, I just had IBS.
- They sent me to a Low FODMAP workshop. Useful, but Iâd already figured most of it out myself.
- They ran more tests. Everything came back ânormal.â
By university, Iâd just accepted my fate. I avoided social events, stuck to my âsafe foods,â and assumed this was my life now.
đĄ The Turning Point: Whacky âNutritionistâ & Figuring It Out Myself
In 2022, after suffering with IBS for 7 years at this point, I decided to take things into my own hands. I booked an appointment with a nutritionist, hoping science-backed guidance.
Instead, she placed random vials on my arm, tapped my elbow, and claimed to diagnose me through whether my elbow reacted to her tapping it. She called it "quantum physicsâ. Apparently, my IBS was caused by âparasites,â and I needed to take specific probiotics - chosen based⊠you guessed it, how my arm reacted to her tapping.
It was the moment I realised how much misinformation and scam-practices are out there. I got out of the appointment as quick as I could.
So where did this lead me? After years of trial and error, I finally figured out what actually worked for me:
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A structured Low FODMAP approach to identify triggers
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Balancing diet & gut-brain strategies rather than extremes
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Recognising stress as a factor - but not the sole cause
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Refusing to accept âItâs Only IBSâ as a valid answer and to feel shame about the condition
đ„ Why I Created This Community
Because I donât want you to go through years of trial and error like I did.
For years, IBS was treated like some minor inconvenience, by doctors, therapists, and even unqualified nutritionists who should have known better. But if youâre here, you know itâs not minor. It impacts every part of your life.
This group exists because you deserve better answers than âItâs only IBS.â
đŹ Letâs Talk - Whatâs Your Story?
I know my journey isnât unique - so many people go through the same cycle of dismissal, frustration, and trial & error.
đŹ Drop a comment below and tell me:
- How long have you had IBS?
- Whatâs been the hardest part for you?
Youâre not alone in this. Letâs figure this out together.