EDS Collective
Private
1 member
Free
🌱 Support for people living with Ehlers-Danlos Syndrome (EDS) and its many comorbidities (POTS, MCAS, chronic fatigue, dysautonomia, etc.).
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🌿 EDS COLLECTIVE
|| A Community for those navigating Ehlers-Danlos and its complex spectrum of comorbidities.
Connection • Education • Empowerment
šŸ’« Our Mission
Create a compassionate, informed space where individuals with Ehlers-Danlos and related conditions can find resources, share experiences, and thrive through collective understanding.
🧬 Who We Are
Patients, Caregivers, Practitioners & Advocates united by lived experience.
Together, we aim to share the hidden realities of connective tissue disorders while promoting self-advocacy, medical literacy, and holistic wellbeing.
šŸŒ Comorbidities
EDS rarely walks alone — our community understands the complexity.
🩺 Postural Orthostatic Tachycardia Syndrome (POTS)
šŸ”„ Mast Cell Activation Syndrome (MCAS)
šŸ’¤ Chronic Fatigue Syndrome / ME
🧠 Dysautonomia
šŸ’Ŗ Fibromyalgia
šŸ’“ Anxiety
  • ETC...
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EDS Collective
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Ehlers-Danlos Syndrome
Other Common Co-morbities: POTS, MCAS, Dysautonomia, Chronic Fatigue, Fibromyalgia, etc...