Fcuk it, here’s my story. · Cancer Warriors

Fcuk it, here’s my story.

Posted this in a fb group when questioned on my anonymity. Might as well post it here.

Yes I’m just a cancer patient who has been scared out of his mind with the unknown and I leapt at the soc with both hands because I knew no better.

25 months ago I was diagnosed and when I got the news that I was stage 4 with a 25x19cm primary in my kidney, 20+ mets in my lungs, a 6x4cm met my aorta, 4x4cm by base of wind pipe and 8mm in my pancreas I thought I would be dead soon.

I went through the kidney removal and was opened up from just below sternum to belly button and across to somewhere above my hip and thankfully they managed to get the kidney out but I bled out and heart was stopped. 5 units of blood and several litres of plasma and whatever else they gave me got me back. Apparently there were 4 peoples hands and a robot in me trying to get that bad boy out of me. Surgeons are understated people. A month after the op he told me that I gave him quite a fright but didn’t go into details. I only know this as a friend got the info from the ICU nurse but kept it from me until I had recovered a month or so later. I was back at work 7 weeks later. I was 10kg lighter 3 days after the op.

I then started immunotherapy which Has left me with a damaged pituitary gland that doesn’t produce ACTH so my remaining adrenal gland doesn’t produce cortisol and I have to take a pill for life daily to stay alive. I spent 7

weeks like a 100 year old man who didn’t have any energy or appetite and I had to take a friend to the hospital with me for a colonoscopy because I was too weak to get there on

my own and didn’t have the strength to carry a light bag with some

toiletries and change of underclothes. Thankfully I was diagnosed with Acute Adrenal Insufficiency but only after a family member went to a routine appointment and pushed the clinic to see me. I think I would have been dead within another couple of weeks if that had not have happened.

I had a trip to A&E the other week as I collapsed 4 times in the night trying to get water. When you hit a hardwood floor on top of concrete it’s you that hurts. I’m still in a bit of pain now and I had a infection and I didn’t have enough cortisol to keep my endocrine system topped up and stimulating my body to fight the infection. 100mg cortisol, liquid antibiotics, 2L of plasma lite and a course of oral antibiotics later It still hurts to breathe in fully now.

6 months ago I was taken off of my immunotherapy as my biggest mets had grown and they put me into cabozantanib. I looked up the pharmacological data on it and I wasnt enthused. <25% chance of survival

at 21 months.

In December 2023 I thought to myself should I stay as an overweight (>30 bmi) male and is my size hindering my treatment? I did what any non-medical patient does and I searched youtube!

I had shown shrinkage of my mets in May 2023 and thought it was wonderful that the immunotherapy was working and it was worth the damage it did to my body.

By my January 2024 appointment I told

the oncologist that I had an epiphany and that it was my lack of food that had done the heavy lifting of shrinking my tumours and that I’m going to go carnivore as I want to eliminate carbs and crap food from my diet. She told me not to do that and to eat a balanced diet. Also told me not to do IV Vitamin C

I ignored that advice and I am now 30kg lighter and feel a hell of a lot better in myself than I previously did.

I started to read Nashia Winters book and put it down when she banged on about plants. They did nothing for me when I went vegetarian then vegan.

For the first time in my life I control my hunger and I can go a day or days without food. I have undone 20

years of fat growth, and metabolic injury, feeling miserable with my life in 8 short months. Hell I even got rid of acid reflux in 2 weeks and stopped taking a medication for that.

I then picked up Jane Maclellands book and realised I can treat this myself along with the soc which is my base now as they do the bloods and CT as well as allopathic medical training. It confused the he’ll out of me as I have no

medical/biology knowledge. The book tried to be all things to all people. I then got Dr Neil Mckinneys book (Natropathic oncology) and went straight to the renal cancer section and got a protocol from there. Jeffrey Dach MD’s the cancer toolkit” is also worth having but he has no index which is annoying but he does have a website with a list of cancer types and blockers for those.

I’m just trying to navigate this and stay alive. I as everyone else here has been scared, felt desperate and powerless. We jump at SOC with both hands with out knowing all the downsides but right at the start I was petrified of chemo and was relieved when I was told that there are no chemotherapies for my renal cancer. The bad news what that they have very little to tackle it in their toolkit.

I’m in here and a renal cancer warriors group and 2 skool groups (keto for cancer ,paid) and (cancer warriors, free ). I’ve had consults with 3 different companies as who doesn’t want many minds and information to work with)

I’ve watched a shit ton of carnivore videos then that lead me into Lrofessor Thomas Seyfried and a Cancer as a metabolic disease. I listen to that incredible man talk and after a time you start to understand. He keeps it simple so the lay person (us) can get a grip of the concepts. https://youtube.com/@talkingcancer-u4k

You can listen to interviews with him

(about an hour long) on @Metacancer on YT and metcancer.com has a list of his papers. Plenty of other channels.

I’m taking a 2 week break from

all medications, supplements etc while I heal and I’m not worried about it.

Oh, one nugget of good news, I shrank my 3 biggest mets by up to 30% on my last 3 monthly CT scan. I have lost 30kg and 8-10” from my waist.

Oh, and I’m pissing off my oncologist who seems to be very closed minded for a PhD scientist but I guess they have to be very careful and treat us with the restricted tools and flawed science paid

for by drug companies who frankly have done fuck all for the cancer patient and made sure their coffers are lined with gold paid for by the blood and suffering of patients who have enough on their plate physically and mentally with the cancer. AE’s should not be a thing.

When I said to an oncology fellow that cancer research has not done very much and it’s all wrong he said that they have made great strides. I said going from 10 months overall survival to 21 months with 25% chance wasn’t a great leap forward. I’m sorry to be greedy and want more than the 5% chance that stage 4

renal cancer patients have for life at the 5 year mark. In this chair it doesn’t feel like progress. Pablo Kelly, god rest his soul, stayed alive for 10 years by refusing SOC and concentrating on metabolic therapy. Carnivore/Keto and lifestyle.

Buy a keto-mojo and keep your GKI <3 if you can’t do that you’re eating the wrong food or too much food.

Oh, to answer your question as to why I want to say anonymous it’s because I want to protect my livelihood and the livelihood of others. I’ve been working all though this and only now am I thinking that I should really concentrate on myself and my healing. I asked great friends (who looked after me after my op) if that makes me selfish, as it felt it to me, and they said that I don’t have a selfish bone in my body.

I hope you can see I’m not here with any malice Im just trying to navigate this for myself and if I can help others get the information quickly that has taken me a long time to learn at an earlier stage in their journeys then surely that has to be a good thing?

Sign the petition from yestolife.org.uk as they want integrative medicine to be built into the NHS. We the people have suffered long enough.

Get yourself a keto-mojo and get your GKI<3 on a daily basis. I’m mostly <2 and quite often <1 just with diet. The

professor says that it’s impossible without medication. I’ve proved him wrong on that point but it’s good news for the rest of us.

Cancer feeds in glucose and glutamine as the 2 fermentable fuels due to the dis regulated/damaged Mitochondria what cannot use oxidative phosphorylation to produce ATP (the normal process in a healthy cell). They cannot feed on beta hydroxy butyrate (ketones) hence why it’s important to get into ketosis.

Get yourself into HBOT chambers as Multiple Sclerosis centres which are cheap but restricted to 2ATA. Deeper is better but we have to work with what’s affordable and accessible.

I bet we have all suffered and I’m in relatively good shape

compared to many others.

I’m off to eat some brunch. Eggs of course.

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