I've never been particularly 'good' at waiting 😂. Anyone who knows me will probably have a laugh at that! I've always been someone who likes to get things moving, my body included!! If there's somewhere to be or something to organise, I'd much rather get on with it than sit around waiting. I headed home to Melbourne over the weekend and it was a reminder of how travelling has become a good test of my patience. Like having to wait until everyone else has left the plane before I can disembark in my wheelchair. I understand why, and the airline staff are always helpful, but watching everyone else walk off while I'm still sitting there isn't exactly my idea of fun! Living with MND has meant accepting that plenty of things now happen at someone else's pace rather than mine. And while I've become pretty good at adapting to the practical side of that, it hasn't magically made me a patient person. I'm a work in progress, I guess! I think that's something we sometimes overlook when we talk about adapting to change. You can understand why something needs to happen, accept that you can't do much about it, and still find it incredibly annoying! I'm curious, what's one everyday situation that really tests your patience? Traffic? Waiting on hold? People who take forever to get organised? Or are you one of those wonderfully patient people who just takes it all in their stride?

I think I've touched on this before but I often come back to it, thinking about how much uncertainty we've become accustomed to living with. Cost of living pressures, wars, political tensions, technology changing faster than we can keep up with, and a constant stream of news telling us what else we should be worried about. And somehow, we just get on with things. We go to work, make dinner, organise our lives and carry on as though all of this is perfectly normal. I've had to become pretty comfortable with uncertainty over the past nine years living with MND. And I've certainly found that we can adapt to circumstances we never imagined we'd face. But I also wonder whether there's a downside to becoming so good at adapting. When we're constantly adjusting to the next challenge, do we sometimes stop noticing how much it's taking out of us? I'm not suggesting we should all stop reading the news or retreat from the world. Being informed is important... to a degree. I think there's a difference between knowing what's happening and feeling responsible for keeping up with absolutely everything!! Do you think we're becoming more resilient in today's world, or have we simply become better at functioning under constant pressure?

I think one of the better things about getting older is realising just how many things you don't actually have to care about. My list is getting longer… - Uncomfortable shoes. I was once known for my love of high heels. Those days are well and truly behind me. Nowadays, comfort wins every single time and I'm not sad about it! - Saying yes just because I feel like I should. A polite no is perfectly acceptable. - Dressing for my age. What does that even mean? If I like it, I'll wear it. - Staying up late because everyone else is. Sleep wins. - What everyone thinks of me. I won't pretend I've completely mastered this one, but I'm a LOT better at it than I was 20 years ago. There are definitely some advantages to getting older. You know yourself better, you're a bit more comfortable saying what you want (and don't want), and some things that once seemed terribly important, well they just… aren't anymore. So let's hear yours - what are you officially too old to care about? Funny, serious or completely ridiculous answers all welcome. 👇

What would it say? *my answer is in the comments 😋

I only recently came across it… and honestly, it explains energy management better than almost anything I’ve heard. The idea is simple: Imagine you wake up each day with a limited number of spoons. Each spoon represents energy. Getting dressed might cost a spoon. Working costs spoons. Stress costs spoons. Appointments cost spoons. Even socialising can cost spoons sometimes. For people living with chronic illness, burnout, anxiety, caregiving stress, or just mentally overloaded seasons of life… the spoons run out quickly. And I think one of the hardest things is that other people often can’t SEE it. They see you smiling. They see you functioning. But they don’t see the constant calculations happening in your head: “If I do this today… will I crash tomorrow?” “Do I have enough energy left for this conversation?” “Is this worth spending my last spoon on?” Honestly, I think a lot of us could benefit from being more aware of our spoons. Not just physically… mentally too. Because some people aren’t lazy. They’re overloaded. Some people aren’t antisocial. They’re exhausted. And sometimes resilience isn’t pushing harder. Sometimes it’s learning how to protect your energy better. What drains your spoons the fastest these days?