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Owned by Pamela

This is a friendly space to help parents navigate allergies that are not in the box and get lost in the lack of info space.

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2 contributions to Kids allergies not in the box
help build a safe community for parents of kids with different allergies
Let's get together and create a community for parents to bounce ideas off each other. what works for one might not always work for another however it gives options to parents doing all they can and not quite succeeding. from food options to Drs to visit.
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What is this community about you ask?
Okay so I have kids with a Sugar Malabsorption (and dairy allergy) or at least its a malabsorption while their bodies grow and decide if its this or an actual allergy "so said the specialist" 5 years ago while I had a baby that screamed almost none stop for weeks and needed answers. Not that I really got any answers. So here I am 5 years later, 2 kids with differing levels of a dairy allergy and sugar malabsorptions looking to create a community for parents with kids that are in the too hard to solve or "not in the box" allergies and intolerances during their trial and error times. knowledge is power and sharing your stories or your trial and errors may help someone else that is at the end of their tether, I know that I tried everything I could but had limited resources at that time and it was the few tiny snippets that I could find that I used to assist. Now I want to make an easier place for others that are now in the footsteps that I and others have been in to save a new mum the tears of frustration if I can. I am by no means a Dr and I want to say that Drs know best but some of the things I have been told by Drs is a joke! So trial and error but that one thing that worked for this child might just work for that child but at the least you can say you tried. As we grow I will add things in like group meets, chats and tabs for specifics but until then lets just get the comments flowing and see how we can ease life for a tired worn out mum or lessen the tummy pain and troubles for a baby or toddler that can not explain it to us. Always be kind and not judge, this is a safe space for us to share. do not spout that something does not exist simply due to you not knowing about it, there is a lot of outdated information and a prime example us that a genuine lactose intolerance from birth is rare! No it is not rare it is misdiagnosed and I am sure this is not the only one.
0 likes • Jan 8
@Anuoluwapo l Growth Professional I was left to go by trial and error, it was too hard for most of the drs, I was even told by one that I just needed to alturnate the use between lactose free and std formulas...... I have two that are dairy allergy and sugar malabsorption... there was little information however that has grown in the last 5 years but there still needs to be a community like this for all to discuss what has or has not worked for them so I will give it a go
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Pamela Macdonald
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@pamela-macdonald-5467
What do you do when your kids have allergies that are not in the box?.... you spend hours reading, looking, trial and error until you 'find what works

Active 45d ago
Joined Jan 7, 2026
Kalgoorlie