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Cancer Warriors

484 members • Free

Comunidad De Sanidad

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35 contributions to Cancer Warriors
Latest Update & Insights
Hey Warriors, I wanted to share an honest update about my mum’s latest scan and what I’ve learned through this process — I hope it helps others make more informed decisions. Unfortunately, my mum’s recent PET scan results weren’t good. For context, the previous scan in June showed a mixed response with one new lesion appearing. Because of financial constraints, we stopped IV Vitamin C and HBOT about four months ago, and I had planned to strengthen her protocol with additional off-label therapies — Low Dose Naltrexone (LDN), Doxycycline, Hydroxychloroquine, and Niclosamide — all discussed in Jane McLelland’s book How to Starve Cancer. My mum completed the 3-month Orthomolecular protocol back in June and that’s when we saw positive but mixed results. At the time, my mum had strong faith in the NHS oncologists and their plan with immunotherapy (Keytruda). They weren’t sure if the June scan reflected pseudoprogression or inflammation, and even though the radiologist advised a CT scan for clarification, the oncologists decided to wait until the next PET scan. Sadly, that delay cost us valuable time. The latest scan now shows more lesions, and we were told now that SRS/Gamma Knife is no longer an option. The oncologist’s words were: “It’s too late for that.” Also CA125 jumped from 395 to 1100 in 3/4 months. The NHS is an incredible resource in many ways, especially because it funds chemotherapy and immunotherapy, but most NHS doctors have little or no understanding of metabolic therapy. They tend to dismiss it or even speak negatively about it. I printed out research papers and handed them directly to the team, but they ignored them completely. My mum followed their advice because she trusted them, which is understandable, but this experience has changed her perspective. Now she wants to move forward under integrative expert guidance, possibly through Astron Health or a similar precision-medicine approach. From Jane McLelland’s book, I learned that adenocarcinomas (like my mum’s) are generally glutamine-driven, meaning they rely heavily on glutamine as a primary fuel source. We target glutamine in several ways — through fasting and exercise simultaneously, which deplete available fuel, and more importantly through the use of specific off-label drugs. One of the most powerful glutamine antagonists is DON (6-diazo-5-oxo-L-norleucine), though it’s out of reach for most of us due to limited access and high cost. That’s why it’s crucial to investigate or implement other off-labels that can impact glutamine metabolism indirectly. This is also where diet becomes strategic: a pescatarian approach, as Jane suggests, or a vegan keto diet during the kill phase makes a lot of sense for targeting both glutamine and methionine metabolism simultaneously.
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3 likes • Oct 17
"I am very sorry to hear that about your mom's process. Thank you for your work and strength to continue with the same dedication in the mission you have set for yourself. It is clear that every diagnosis and every individual are different. As I shared here in June, I achieved my first NED (No Evidence of Disease). My protocol is very simple: HBOT (Hyperbaric Oxygen Therapy), mebendazole, and intravenous vitamin C. I am in a country and a healthcare system that have allowed me to incorporate these extra components. I admire your deeper understanding of cellular mechanisms. I have learned just enough to make decisions tailored to my possibilities, progress, and needs. I agree that the emotional and spiritual aspects are a huge part of the process, so keep going down that path. From afar, I send you my prayers."
FIRST NED
Companions in this journey, I'm delighted to share with you that last week I had an appointment with my oncologist, and we reviewed the results of my PET scan. In terms of the exam, there is no hypermetabolism, which means there's no evidence of tumors in my body at that level. To provide some context, I was diagnosed with breast cancer with bone metastasis in January 2024. I started my standard treatment with Kisqali and a hormonal inhibitor (Letrozole). At that point, I had a lot of lower back pain, which was actually what led me to the doctor in the first place and revealed the terrifying diagnosis. The cause of that pain was lesions on my vertebrae and bones in the sacrum, iliac crest, and some ribs. This led to a treatment of 10 radiotherapy sessions. After the sessions, I noticed a huge improvement in terms of pain and mobility. Metabolic Therapy Journey After overcoming that first crisis, I began my journey with metabolic therapy in approximately May 2024. Little by little, I incorporated as many elements as possible into it. The first thing I did was to start a ketogenic diet and aim for the desired GKI of 2. For several months, I was able to achieve this almost consistently because I consumed very few calories, very few carbohydrates (10g per day), and very little protein (1g per kg of weight). The fats consumed were between 3 and 4 times the protein. While this allowed me to have a GKI of 2 or sometimes even less than 1, the weight loss became concerning, and at times, I felt weak. This weakness would subside if I ate a good portion of meat. This led me to increase my protein intake to 1.5g per kg of weight and to increase carbohydrates to 20 or 30g per day, while maintaining the fat ratio at four times the amount of protein. Since September of last year, I have maintained this way of eating, and although my GKI often doesn't reach 2, staying more around 3 or 3.5, I feel energetic all the time. Plus, I'm more in control of the changes I need to make to get back to the coveted 2, in terms of choosing foods that transform best in my body.
2 likes • Jun 26
@Lemon P Thank you
2 likes • Jun 26
And vitamin C
I’ll be away for a while…
Hey everyone 👋 I wanted to let you know that I’ll be away for a while to fully support my mum. She’s starting a full protocol next week, and this is a critical moment for us, a race against time. It’s our last chance to turn things around, and I need to be with her 100% during this period. I might still pop in occasionally to see your posts, but I won’t be able to reply or stay as active as usual. That said, I will continue to share occasional promotional posts or donation requests — these are essential to the long-term success of our mission here, and I’m committed to keeping that momentum going, even while I’m away. The admins and moderators will continue managing the community in my absence. Please follow them and support each other. They also have my number if anything urgent comes up and someone needs to reach me. Keep fighting. Stay strong. I’ll be back. ❤️
1 like • Apr 14
Praying for your family
Bad news…
Just wanted to share an update from today. Unfortunately, the mets are continuing to grow. The report wasn’t very detailed, and the oncologist didn’t give exact measurements. He mentioned “enhanced sub-centimeter lesions,” which means they’re still under 1cm. Previously, they were between 1–3mm on the last MRI. There’s also a possible new lesion on the brain and some concern about a lymph node near the stomach area. The oncologist said that if the brain mets can’t be controlled, the funding for immunotherapy has to stop. Even though this is hard news, I had a feeling we might not have been doing quite enough, but I still hoped that what we were doing would be enough to show some results.
8 likes • Mar 31
Sorry to hear that. The best protocol is a strong faith. 🙏
It's still good news, but not exactly what I was hoping for
Well, this isn't the news I was hoping for. It looks like we have a slight uptake in glucose from this pet scan. The good news is the metastasis is still localized to my right hip area. There are no signs of progression to other organs. This time my dietary instructions for the petscan were much more strict. Protein and fat only 24 hours prior to testing. No oral medications for blood sugar after midnight the night prior. My oncologist doesn't seem to be too concerned. He recommended that I keep doing what I am doing. I have decided to begin implementing fasting at least 1x a month when I do HBOT. Maybe even weekly if my weight will tolerate it. I have also decided to increase the Mebendazole from 3 days on/4 days off to 1 capsule daily. I'll continue with Sodium Phenylbutyrate 2 tablets (1 gram) daily for 3 days every month. My tumor markers remain normal. I will have labs drawn again on 03.31.2025 for tumor markers. I am considering adding Ivermectin as the next off-label drug use if necessary. I really do not want to have chemotherapy. And I also don't want to spend my life cramming down supplements/drugs according to the clock. Never mind the expense. Then there's the N=1 consideration, how will I know what's working. So many things to ponder. I am maintaining my exercise and stress management routines. I still believe that restricting the glucose and glutamine are part of the fundamental implementation of self-prescribed Metabolic Therapy. It may become necessary to implement other strategies along the way. That may include more off label drug use along with other therapies this community is so brilliant at researching and sharing. And it's also about community that provides support and information on what sometimes is a hard and lonely road to better health outcomes❤️ Live Well!
3 likes • Mar 27
It is clear to me that the press part never ends. Only we know the strength of spirit required to accept and live through this. Stay strong beautifull @Kimberly Smith
2 likes • Mar 27
@Kimberly Smith do do i.
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Melissa Mantilla
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@melissa-mantilla-5135
Im from Colombia and i want to learn all about health

Active 18d ago
Joined Nov 9, 2024
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