I was born with HED, and like many of your children or loved ones, my early years came with challenges most people never see. I grew up navigating heat, symptoms, and limitations that most people couldn’t understand — but by God’s grace, I survived what doctors said I wouldn’t. Now, as a grown man who defied the odds, I want every parent and every individual in the rare‑disease community to know this truth: your child can thrive, and you are not alone. That belief is the heart behind RareTogether — a new space I’m building specifically for rare‑disease families to find connection, support, and community. A place where our stories matter, our challenges are understood, and our voices are heard. To give you a glimpse of what’s coming, here is a live preview of the app in its current development stage: 👉 https://bit.ly/4jpNFT0 Right now, I’m opening a small Founder’s Circle for those who want to walk with me as this platform continues to grow. Founder’s Circle Members Receive: - Early access to the app - Monthly check‑ins with me - Behind‑the‑scenes development updates - A private community - Recognition inside the app as a Founding Supporter RareTogether is still in development, but the momentum is real — nearly 40 families from HED and ED groups have already expressed interest, and more are joining as the vision grows. If you’d like to be part of the early group or want more details, feel free to DM me and I’ll share everything directly. We’re stronger together — and I’m honored to build something meaningful for families like ours.

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